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  • Giving back to the hospital that changed our lives

    Written by Heather Shields

  • A survivor of childhood cancer, 25 years later: Nessa’s story

    Twenty-five years ago in September of 1988, Nessa’s life was forever changed by words that weren’t talked about much back then: childhood cancer. After finding bumps on Nessa’s head and swollen lymph nodes, her mom knew something wasn’t right. After a trip to the pediatrician’s office, they were told to go to Orlando Regional Medical Center (ORMC) to see Dr. Vincent Guisti, a pediatric oncologist, to find out what might be causing these symptoms. Since the visit required an overnight bag, Nessa’s mom, Carol, knew it wasn’t what she’d first suspected – it was something much more serious.

    Receiving a heart-wrenching diagnosis

    Nessa was eight years old and in the third grade at a local elementary school. That day was picture day- a day that many girls prepare for by selecting their best school outfit and making sure their hair looks just right. As her mom was combing Nessa’s hair, she noticed little bumps on her head, and Nessa had been saying she wasn’t feeling well. The next morning, Carol knew something wasn’t right after Nessa woke up with swollen lymph nodes. Thinking it might be a case of mononucleosis, they visited the family’s pediatrician, where they were told to go to ORMC to see Dr. Guisti, a pediatric oncologist.

  • The HPV Vaccine: Questions, Facts, and Misconceptions

    What is HPV?

    HPV stands for human papillomavirus, and these viruses are the most common sexually transmitted viruses in the United States. Most of the people who are diagnosed with HPV are young and sexually active. The rates of HPV infection are high because most people who have HPV do not know they are infected because sometimes the virus shows no symptoms. Most HPV infections show no symptoms, and resolve within two years. However, there are many different strains of the HPV virus, and there are high-risk strains (HPV types 16 and 18) that are associated with cervical, anal, mouth, and throat cancers.

    What is the HPV vaccine?

    The HPV vaccine is a vaccine that can help protect your child against the high-risk forms of HPV that can cause cancer. It does not protect against every HPV strain (since there are more than 100), only 4 high-risk strains of HPV. The American Academy of Pediatrics recommends that girls AND boys receive the vaccine starting at ages 11-12. The vaccine is given three times over a period of six months. To receive the maximum amount of protection, your preteen should receive all three doses. The HPV vaccine can be given at the same time as other vaccines.

    Why should my child start receiving the HPV vaccine now? She’s so young!

    Many parents ask this question, because they are unsure about giving their preteen a vaccine that protects them against a sexually transmitted infection when he or she is not engaging in sexual activity. Parents will ask if the vaccine can be delayed until their child decides to start having sex. HPV vaccines offer the maximum amount of protection for your child when they are given in all three doses BEFORE your child begins to have any sexual activity with somebody else. One study has shown that almost 80% of infected teenagers have contracted HPV within 2 to 3 years of the first time they engaged in sexual activity.

  • How I’m teaching my child to treat others with special needs

    I was with my two kids recently at an indoor play place when a teaching moment happened upon us. We saw a little boy there with his mom, and he was sitting in a wheelchair. My 4-year-old looked at him curiously and then asked (in a rather loud voice), “Mom, why is he sitting in that chair instead of walking?”

  • A miraculous first year: Myles’ story

    Written by Katie Murillo

  • Are we parenting from the rear view mirror?

    Over the past couple of weeks, the back-to-school rush has been in full swing. New schools, new milestones, new sports activities- it’s the beginning of lots of new things for our kiddos and for us as parents. My Facebook feed has been filled with first-day-of-school photos displayed by proud parents (me included). But, along with those proud and joyful moments, there’s often a hint of bittersweet regret. Our kids are growing up too fast. Where did the time go? They aren’t babies anymore. I hear and see those phrases a lot.

  • Blessed with tiny treasures: Carson and Kendall’s story

    Written by Heather Shields

  • What happens when we compare our child’s illness to another?

    Recently, a friend shared with me a book whose title and premise really upset her. She is the mother of a cancer survivor and friend to many cancer patients, and the title of the book offended her to the core. It’s called, “I wish my kids had cancer: a family surviving the autism epidemic.” I hesitated even to share the title of the book because it elicits such strong emotions, even to those of us who’ve never read the book. And, I’m not sure that this book deserves the attention we’ve given it, good or bad.

  • What is hand, foot, and mouth disease?

    If you’re the parent of small children, odds are you’ll become familiar with hand, foot, and mouth disease at some point. It’s fairly common, but not nearly as serious as its name might suggest.

    What is Hand, Foot, and Mouth Disease?

    Hand, foot, and mouth disease is a viral illness that can affect anyone, but is most commonly seen in children under 5 years old. Along with the usual symptoms of a virus- fever, irritability and lack of appetite- children often develop small blisters or red spots on the palms of their hands and soles of their feet. Blisters may also be found in the webs between fingers and toes, or on the buttocks, and can resemble chickenpox. Children also will develop small, painful ulcers in their mouth and on their tongue.

  • Prescription: bed rest.

    Courtney Kowalchuk is the mother of twin girls after battling endometriosis most of her life. After several surgeries to correct the damage done by this disorder, and a challenging pregnancy and delivery, she hopes that by sharing her experiences, she can help inspire strength and encouragement for others. Courtney is the President/CEO of BrightLight Branding, a full service branding and marketing company located in Orlando, FL.