Sickle Cell Disease Program
Contact Us:(321) 841-8588
Due to advances in research and treatment, children with sickle cell disease are living better lives. Our comprehensive sickle cell disease program focuses on prevention, treatment, and follow-up care to meet your child’s sickle cell needs. Our expert clinical team has staff members exclusively trained and dedicated to care for any child with sickle cell.
Here at the Haley Center for Children's Cancer and Blood Disorders we offer the following outpatient clinic services:
The team on our inpatient Pediatric Hematology Unit can handle any complications related to sickle cell disease. Our inpatient Intensive Care Unit (ICU) also cares for patients with life-threatening complications.
The FDA-approved medications we routinely prescribed our sickle cell patients are hydroxyurea, Endari, Voxelotor, and Oxbryta to prevent and treat various routine sickle cell complications such as anemia and vaso-occulsive crises. Additionally, we offer Phase II and III clinical medication trials for children that are eligible.
We are also developing our pediatric bone marrow transplant program for children who qualify for this curative approach. We are looking forward to offering this service by 2023.
We currently do not offer gene therapy but can provide consultation and referral as indicated.
At Orlando Health Arnold Palmer Hospital, we know that there is no typical day in the life of a child with sickle cell disease. For unexpected illness or crisis, our infusion room at the Haley Center for Children's Cancer and Blood Disorders provides care for your child’s most urgent needs.
Alternatively, our team members in the Emergency Department are available any time of the day or night to help guide your child’s care.
All babies in the state of Florida are screened for various conditions after birth, including sickle cell disease. This is done by a heel stick. When a baby born at Winnie Palmer Hospital for Women & Babies receives an abnormal screening for sickle cell disease, we offer support to them and their families.
Our Newborn Screening Program offers parents and families a designated nurse coordinator to provide more testing and education following an abnormal screening. Early detection and treatment are critical to managing sickle cell disease as your child grows.