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Multidisciplinary Care for Children with Spina Bifida

Your child deserves a chance to take on the world. You don’t have to let anything hold him or her back, even a condition like spina bifida. Our team of healthcare professionals is here to help your child progress to their fullest potential.

Spina bifida is a neural tube defect that’s often diagnosed while in utero. As the fetus was developing, the spinal cord wasn’t able to fully form, causing a sac of spinal fluid, tissue and spinal cord to form outside of the body. After birth, doctors perform surgery to place the sac back inside the body. However, long-term care is needed due to the exposure of such important body parts.

Sometimes, more surgery is needed for patients with spina bifida to drain fluid from the brain. Our team of neurosurgeons may suggest placing a tube, called a shunt, in your child’s head to help drain the accumulation of cerebrospinal fluid around the brain to another place in the body where it can easily be removed.

“Since we found out Kennedy’s diagnosis, the Spina Bifida clinic has been like a warm hug for my family. They are there to hug us, cry with us, listen to us and help us. I cannot praise the staff of the spina bifida clinic enough. The doctors and nurses always have a smile on their face and helpful tips and advice with each visit. We are treated like family with each visit. Our family is forever grateful for the care and the comfort that was given to us after we found out that our daughter, Kennedy, would be born with spina bifida.”

Shannon Tuttle

Keep Up with Ongoing Care

Lifelong care is especially important for a child with spina bifida. At the Spina Bifida Program at Arnold Palmer Hospital, we have developed a multidisciplinary team to ensure optimal quality of health and well-being for your child. Every Friday, our team of experts meets with spina bifida patients to provide independent evaluations and recommendations for care. These professionals include specialists from:

If your child has been recently diagnosed with spina bifida or you’re searching for a new care team, make an appointment with us today. 

“The nurses at the spina bifida clinic gave me hope when I had none. They opened their hearts and supported my son, Mason. The nurses showed me my baby had potential and opportunities waiting for him. Because of their devotion to the spinabifida community, they are not just nurses, but have become part of our family as well.”

Mary Frazier