The Rare Brain Tumour Consortium Registry and Biobank
The Rare Brain Tumour Consortium Registry and Biobank
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Clinical Trial Information
Trial Contact: El-Shami, Jessica; Leffin, Melissa; Spinelli, Jennifer; Cevallos, Claudia
Trial Phone: 321.841.3837 ; 321.841.2008 ; 321.841.5357 ; 321-841-7561
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IRB No: 19.017.02
Protocol Abbrev: RBTCR
Principal Investigator: Amy A Smith, MD
Age Group: Pediatric
Secondary Protocol No: RBTCR
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Objective
To support translational research for all children with a suspected of confirmed diagnosis of rare pediatric central nervous system tumors
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Key Eligibility
All patients (from age 0-18 years) who are suspected or diagnosed with rare central nervous
system tumors (ETANTR/ETMR, PNET/embryonal brain tumor with BCOR/FOXR2 alterations
and not otherwise specified (NOS), ATRT-and other CNS rhabdoid tumors, central nervous
system mesenchymal tumors NOS, pineal region embryonal tumors) on clinical criteria will be
eligible to participate.
