Cystic Fibrosis National Registry
Cystic Fibrosis National Registry
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Clinical Trial Information
Trial Contact: Tilme, Linda; Beltran, Yajira
Trial Phone: 321.843.5278 ; 321.841.7619
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IRB No: 11.014.02
Protocol Abbrev: CF Registry
Principal Investigator: Mark R. Weatherly, MD
Age Group: Pediatric
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Objective
The CF Patient Registry is an observational study. It does not involve medical treatments and serves only as an data collection of demographics, characteristics of disease and treatment, utilization patterns, and clinical outcomes.
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Key Eligibility
All patients diagnosed with CF and CF related disorders
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