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  • If your child has had a concussion or brain injury, you may not see the full effects for years to come

    As an occupational therapist, one of the things that I do in my job is assist children who are recovering from a traumatic brain injury. I help them work through the new challenges they face because of their injury in hopes that they can fulfill their full potential. As a medical community, we are still working to fully understand how a brain injury affects a child’s long-term growth and development, but what recent research has shown us is that it may be long after the initial recovery period from a traumatic brain injury (even years later) before we see the full effects the injury will have on their growth and development.

    What parents need to know

    When we talk about brain injuries, it’s important to understand that we aren’t only talking about major injuries; we are also talking about relatively minor brain injuries, such as a concussion. Whether they have had a severe injury or a relatively minor one, children may experience long-lasting effects that can affect their development. A child may sustain a brain injury and experience a significant decrease in social, emotional, behavioral or cognitive abilities at the time of injury. (Cognitive abilities refers to a child’s capacity for learning and understanding, acquiring knowledge). Years later, they may then experience a “stall” where they fail to develop their cognitive, social, emotional or behavioral skills.

                                                     

  • Fun is the name of the game! Learn about the benefits of Aquatic Therapy for your child.

    One of the things I love about being an occupational therapist is using unique tools to help a child reach their full potential. One of those tools that may be a bit unexpected is a swimming pool. The properties of water offer unique benefits, are familiar to children and inherently add the unquestionable element of fun. As therapists we know that when a child is having fun, they will try harder and risk failure to reach their goals. When we treat your child, our pursuit is to build on their strengths and challenge their weaknesses while engaging them in motivating ways. Fun is the ultimate motivator! Children who have faced physical disabilities, learning difficulties or traumatic injury certainly know how fun can turn a daunting challenge into an achievable one.

  • Complex Care Management

     

  • Silmitasertib (CX-4945) in Combination With Chemotherapy for Relapsed Refractory Solid Tumors

    Phase I/II Study of Silmitasertib (CX-4945) in Combination With Chemotherapy in Children and Young Adults With Relapsed Refractory Solid Tumors

  • Pediatric Neuro-Oncology Program

    The Pediatric Brain Tumor Program is a comprehensive team dedicated to the care of patients diagnosed with brain and spinal cord tumors.

  • A US Multi-center, Prospective, Non-interventional, Long-term, Effectiveness and Safety Study of Patients Treated with SKYTROFA (lonapegsomatropin-tcgd) (SkybriGHt)

    A US Multi-center, Prospective, Non-interventional, Long-term, Effectiveness and Safety Study of Patients Treated with SKYTROFA (lonapegsomatropin-tcgd) (SkybriGHt)

  • Project:EveryChild - A Registry, Eligibility Screening, Biology and Outcome Study

    Project: EveryChild a Registry, Eligibility Screening, Biology and Outcome Study

  • 4 Tips for You and Your Kids During the COVID-19 Outbreak

    Even with COVID-19 — the disease caused by the new strain of coronavirus — regularly in the news, a lot of unknowns still remain. Even with a steady string of updates, facts and statistics to digest each day, it’s difficult to know what to do or what to say inside the walls of your own home.

  • For Down Syndrome Awareness Month, help us beat the myths and prejudice

    In honor of Down Syndrome Awareness Month, please welcome our guest contributor, Eliana Tardio. Eliana is the mother of two children with Down syndrome. Her advocacy work has been nationally and internationally highlighted. She works as a Family Specialist for the Early Steps program of the State of Florida, and she spreads the word about the benefits of inclusion in several well-known web platforms in both English and Spanish. This article is part of her October Awareness carnival for Down syndrome featured on her personal blog www.elianatardio.com.

  • Holding out hope for their child born with Congenital Heart Disease: Mia's Story

    If you were to spend a day with the Gravitz family, you would be welcomed with open arms and be overwhelmed by the love this family has for each other. Nothing is more important to Alecia and Marc than spending time with their kids - baking cookies on rainy days, and cozying up in their pajamas to watch movies on weekends. But just over two years ago, life, as they knew it, turned upside down.

    Heartbroken

    When Alecia was eight months pregnant with their second child, Mia, she went to her doctor for a routine checkup. During the exam, her doctor realized Mia was not moving as much as she should be and Alecia was sent to a nearby hospital. Alecia and Marc knew something was wrong after it was recommended they see a perinatologist (a high-risk doctor). “I started freaking out,” she admitted. “I was so scared; I didn’t know what was happening.”