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Free Down Syndrome Clinic at the Howard Phillips Center
The 18th Annual Down Syndrome Clinic, presented by the Developmental Center for Infants & Children/Early Steps, provides free resources for infants, children and adults with Down Syndrome. Participating families can see dozens of developmental specialists including dentists, cardiologists, eye doctors, therapists and more. The clinic provides a unique opportunity to access resources and network in one convenient location absolutely free.
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Decoding the FDA’s new gluten-free labeling law
This blog post was written by Dr. Karoly Horvath, pediatric gastroenterologist at the Center for Digestive Health & Nutrition at Arnold Palmer Hospital.
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For Down Syndrome Awareness Month, help us beat the myths and prejudice
In honor of Down Syndrome Awareness Month, please welcome our guest contributor, Eliana Tardio. Eliana is the mother of two children with Down syndrome. Her advocacy work has been nationally and internationally highlighted. She works as a Family Specialist for the Early Steps program of the State of Florida, and she spreads the word about the benefits of inclusion in several well-known web platforms in both English and Spanish. This article is part of her October Awareness carnival for Down syndrome featured on her personal blog www.elianatardio.com.
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Dr. Simms-Cendan answers: “When should I take my teenage daughter to the gynecologist?”
Many parents wonder when they should take their daughter to a gynecologist. Is it with their first period? Is it when they become sexually active? When do they need a pap smear? Some women dread their own appointments and worry their daughters will have a traumatic experience. Well, the good news is that gynecologic care for adolescents has come a long way, and teens can be provided with important information in a sensitive and caring way, and many girls do not even need a pelvic exam!
What’s Normal?
First, let me cover a bit of what’s normal. Most girls begin breast development around 10-11 years of age, and the average age girls start their periods in the U.S. is about 12.5 years. Most girls will bleed 5-7 days and cycles occur every 25-40 days. If a girl hasn’t started her period by age 14, she should be evaluated, and although some girls just need more time, others may have a real problem. Many girls have irregular menses for the first 2-4 years after they start their periods, but if a girl has been bleeding more than 10 days per month, they should be evaluated to prevent problems with anemia. I’ve seen girls who have bled for 6 months before seeing a gynecologist and some have been so anemic by then that they required blood transfusion. Most girls will notice an increase in menstrual cramps about two years after they start their periods, as this is when they start to actually ovulate. Severe cramps so that a girl is missing school are not normal and she should also be seen. Finally, if a girl has had regular menses and then the menses become irregular, skipping months or becoming more frequent, she should also be evaluated. Sometimes there is a hormonal disorder that needs to be evaluated. -
Music lessons provide benefits beyond the piano keys (or instrument strings)
Growing up, a requirement in our home was that my brother and I choose one instrument to learn to play, and we were required to take lessons. For us, this happened to be piano lessons, starting at a young age. I began taking lessons when I was six years old, and continued to play for eight years. That was eight years too long, in my childhood mind. I hated piano lessons – the time required to practice, my teacher’s gnarly fingernails, and worst of all – piano recitals and competitions. Talk about having major stage fright! I was so convinced that my parents were being unjust in requiring piano lessons that I proceeded to write them essays on why I should be allowed to quit. My wish was finally granted when I took up the clarinet in our high school band. It’s a musical instrument too, right? Well, guess what. Fast forward ten-something years later, and I wish I hadn’t quit. And the worst part of it all - my mom “told me so.”
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Living life to the fullest despite being diagnosed with cystic fibrosis: Emily's story
Emily is a vibrant, happy-go-lucky 10-year-old. With white-blonde hair, sparkly blue eyes and a contagious grin, she’s likely to steal your heart as soon as you meet her. To look at her, you’d never know that she has been fighting a serious illness her entire life. -
Get to know Dr. Jeffery Johnson, pediatric nephrologist at the Hewell Kids’ Kidney Center
The Hewell Kids' Kidney Center at Arnold Palmer Hospital oftentimes becomes a home-away-from-home for many children needing outpatient dialysis treatment in Central Florida. The Hewell Kids' Kidney Center cares for children who have been diagnosed with with kidney-related disease such as end-stage kidney disease and obesity-related kidney disorders, as well as those who have undergone a kidney transplant. The team consists of several pediatric nephrologists, nurse practitioners, renal nurses, nutritionists, and social workers. The team recently welcomed it's newest member, Dr. Jeffery Johnson, pediatric nephrologist, in June of this year. Get to know Dr. Johnson in the Q & A below!
Where did you grow up?
I grew up all over since my dad was in the Air Force. We finally settled in Ohio when I was in high school and then I moved to California in my adult years. I had lived in Los Angeles, CA for the past 14 years before moving to Orlando.Where did you go to school?
For my undergraduate I went to Washington University in St. Louis, MO and then attended Case Western Reserve School of Medicine in Cleveland, OH for medical school.What did you want to be when you were a little kid?
I wanted to be a soccer player, even though I was horrible! I didn’t know I wanted to go into the field of medicine until halfway through college. I thought I wanted to do medical research, but after I started doing it I realized it wasn’t for me. With medicine, there is something new every day, which keeps me going.What was your first job?
I worked in a games department at a local amusement park. It was a lot of fun. I worked there in high school and through my first year of college.What are your hobbies?
I run a lot – almost every day. Today I’ll be running eight miles. I like to scuba dive and travel. Bali was probably my most favorite place I’ve traveled to so far.What is your favorite sports team?
The Cincinnati Bengals even they break my heart every year!How did you get into pediatric nephrology?
It was when I did a pediatric nephrology rotation as part of my medical training that I knew that was what I wanted to do – it was very interesting to me.How did you know you wanted to work with kids?
It was probably after my second or third month of working in the adult emergency room that I felt called to work in pediatrics. My mom and sister are both elementary school teachers, so I’ve spent most of my life being around and working with kids.When did you start at Arnold Palmer Hospital and what is it like working at the Hewell Kids’ Kidney Center?
I moved to Orlando for this job and have been here since June 2014. One of the things I love about working here is the team that I am a part of. Everyone is fun and easy to work with. We usually all eat lunch together. It’s like a family here, which is evident in how we care for our patients. We take a team approach in being able to provide comprehensive care to our patients, and everyone is usually on the same page as far as what the protocol should be and what the treatment plan should look like.What is it like working with the whole family and not just the patient?
It’s a fine balance, because I always try to acknowledge and engage the child while also working with the parents and families. But it’s something that I really enjoy. It might not always be an easy day at work, but being able to care for kids and knowing that I am helping them is a great feeling.What is one piece of advice that you always communicate to families and patients?
I think one of the most important things in our patient population is for them to be taking their medicine. In our transplant population, most of them are on an immunosuppressant, and if they don’t take their medication for a few days, they could end up losing their kidney or having recurrent kidney disease. It’s important for me that they understand the importance of taking their medicine and that the family ensures that they will follow through with the treatment plan at home.What would you say has been your greatest accomplishment?
I would say it was when I took over the dialysis unit at Children’s Hospital of Los Angeles. I had to basically redo the unit and start over from scratch, building it from the ground up.What is one thing that patients and families wouldn’t otherwise know about you?
I want families to know that I am honest with them, whether I have good or bad news to share. I would want my physician to be honest with me, so I try and do the same for our families.Click here to learn more about the Kids’ Kidney Center at Arnold Palmer Hospital
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What are the most important things we can give our children?
We have but a few, short years to shape and refine them, to help our children become the people they were meant to be. And then, we send them out into the world to find their way. It’s a tough job, isn’t it? To love and care so deeply about someone, about the outcome of this process of growing up, and yet be forced to let go of how it all turns out?
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How one physical therapist overcame scoliosis and now helps children do the same
My Story
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Look before you eat! Helping kids decode nutrition facts and labels
Understanding how to read the nutrition facts label at an early age can help children and teens make healthy choices throughout their life. When it comes to teaching kids about label reading, it is important to stick to the basics and then slowly build up to the details.