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A letter to other families battling childhood cancer
Written by Colleen and JP Wright, parents of Ethan Wright, Ewing's Sarcoma Fighter and to date, SURVIVOR
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What to expect at your child's therapy evaluation
Your child has been referred to Occupational Therapy, Physical Therapy or Speech Therapy. So, what's next? First of all, don't dread this appointment. Therapists can be a wealth of information and you will leave that first appointment with some useful tools. Part of a therapist’s job is to share valuable information with you about your child- both their strengths and weaknesses. Their job is to help your child reach their maximum potential and equip you to be an expert about your child’s abilities. This is a good thing.
For All Evaluations
Bring your child in comfortable clothing that allow full movement Make sure they are well rested Bring any specific equipment they use such as walkers, splints, or communication devices Be prepared to share concerns you or your doctor may have Provide a list of their medications Be prepared to leave for part of the session if asked (so that therapist can build rapport and see how your child works on their own)What to bring for Feeding Concerns
A hungry kiddo Food you’re sure your child will eat Food you have tried to give your child but they haven’t accepted A drink your child typically accepts: bottle, sippy cup, straw cup, etc. A list of their allergies or recent notes from any specialistsWhat to Bring for School Related Concerns
A copy of their 504 Plan, IEP, Behavior Contract or Health Plan A letter from the teacher expressing any specific concerns (if possible) A sample of their written work from class (if this is a concern) Report a from the school psychologist or therapist (if it’s available)During the Evaluation
Let the therapist take the lead but feel free to comment if you feel your child is not showing their full potential. Be as specific as possible. Remember, you are the expert on your child and the therapist is getting a one-time snapshot. Any information on how your child typically functions is very much appreciated. During the evaluation, your therapists will gather valuable information on how your child responds- or doesn't respond- to certain tasks. The therapist is likely to approach your child in a specific way to achieve a desired outcome. For this reason, resist the urge to help your child complete tasks presented. Remember, therapists are looking to build rapport with your little one and form a partnership with you to ensure your child’s success. They’ll definitely let you know if they need you to jump in and help out.After your Evaluation
Ask the therapist for their professional opinion on what strengths they observe in your child and what areas of concern they have. Would they recommend referrals to other professionals or further testing? If therapy is recommended, how often will they need to be seen to achieve their goals? What skills does the therapist see your child achieving through their intervention? How much work at home will be required to achieve these results? Although most of the recommendations will come during your child’s treatment sessions, you can still leave the evaluation equipped with something beneficial for your child. Ask for a few suggestions on what you can work on at home while you await your first therapy session. Therapists want to build your child’s skills and maximize their strengths so they’ll have great suggestions for toys and fun activities to help your child achieve their goals. -
How to calm your child’s fears at nighttime
At least once a week, my 3-year-old daughter will ask me to lie down with her at bedtime. She usually asks for “mommy to snuggle me,” but the past few times has been because she is scared of the dark. This fear is very common among kids, and there are a few things that we can do as parents to help our children overcome their fear of the dark.
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Living to the beat of a normal heart: Cameron's story
Four years ago when Heather was 36 weeks pregnant, she went in to her doctor’s office for what she thought would be a routine check-up. However, her OB/GYN, Dr. Emma Fritz, told her she needed to go immediately to Winnie Palmer Hospital for Women & Babies, as her unborn son’s heart needed emergency treatment. As a flurry of emotions rushed over her and her husband, Ryan, they put complete faith in the hands of the specialists at Winnie Palmer Hospital and Arnold Palmer Hospital who would soon care for their baby boy.
Expecting the unexpected leading up to Cameron’s birth
Heather was used to going in for testing at her OB/GYN’s office several times a week throughout her pregnancy. Her unborn son, Cameron, had been diagnosed with an irregular heartbeat in the early stages of Heather’s pregnancy, requiring frequent check-ups to monitor his condition. Going in for her 36-week appointment, Heather wasn’t expecting anything out of the ordinary. But one look at her doctor and she knew this time, things were different. -
What you need to know about e-cigarettes
R.J. Reynolds Corporation (makers of Camel cigarettes) knew as early as the 1970’s that almost 90 percent of smokers start to smoke before the age of 18. In fact, Reynolds’ marketing vice president wrote that “ represent tomorrow’s cigarette business. As 14-24 age group matures, they will account for a key share of the total cigarette volume for at least the next 25 years.” He wanted to make “direct advertising appeal to the younger smokers” and Joe Camel came to life as a carefully crafted cartoon rocker. Camel sales to young people skyrocketed.
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It’s flu season! Here’s what you need to know.
This post was written by Dr. Tom Ruffin, pedatric resident at Arnold Palmer Hospital
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What you need to know about head lice
The new school year has begun. Chances are that if you have school-aged children, at some point in time you’ll hear those two dirty, little words: head lice. And if your family has had head lice, you aren’t alone- millions of kids in the United States get head lice every year.
What are head lice?
Head lice are tiny insects, roughly the size of a sesame seed. They are one of three different types of lice that can live on humans- head lice, body lice and pubic lice. Although they can be quite a nuisance, head lice do not transmit diseases. They feed on human blood, and are usually found close to the scalp. Head lice are most commonly spread by direct contact with the hair of an infected person. Although sharing personal items such as hats or hairbrushes can transmit head lice, it is much more likely to spread by direct head-to-head contact. Head-to-head contact is common during play, sports activities, camps, and sleepovers. -
How to keep your family safe this Fourth of July
Independence Day is almost here and it is time to celebrate! Whether you’re planning to enjoy our nation’s birthday at the beach, have a poolside barbeque with friends or a picnic with loved ones, it is sure to be the pinnacle of your summer festivities. And of course, no celebration is complete without fireworks! But remember, there are some important things to keep in mind to ensure everyone’s health and safety this holiday weekend.
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3 steps to change your kids’ picky eating habits
When it comes to getting picky eaters to expand their horizons, parents’ opinions are as varied as the vegetables their kids won’t eat. Every parent seems to have a philosophy on the “picky eater problem” but let’s be honest, we have no idea if the principles we adhere to really work. Well, here’s some good news for every parent struggling with the age-old problem of how to handle finicky eaters.
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How to help your child cope with a serious illness
One of the most challenging times a parent may face is if their child is diagnosed with a chronic illness. Many emotions including anxiety, fear, anger, and even helplessness can overwhelm parents. Children often display complicated emotions of their own, which often mirror that of their parents. All of these emotions can challenge well-known and comforting family rhythms and routines.