Cystic Fibrosis National Registry

Cystic Fibrosis National Registry

November 22, 2017

  • Clinical Trial Information

    Trial Contact: Parrimon, Yozandra; Tilme, Linda

    Trial Phone: 321.841.1361 ; 321.843.5278

  • IRB No: 11.014.02

    Protocol Abbrev: CF Registry

    Principal Investigator: Mark R. Weatherly, MD

    Sub Investigators: Faverio, Luis MD; Garcia, Daniel MD; Sabogal, Carlos MD; Kessler, Cynthia

    Age Group: Pediatric

    Applicable Disease Sites: Cystic Fibrosis

  • Objective

    The CF Patient Registry is an observational study. It does not involve medical treatments and serves only as an data collection of demographics, characteristics of disease and treatment, utilization patterns, and clinical outcomes.

  • Key Eligibility

    All patients diagnosed with CF and CF related disorders