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Pediatric Hemophilia Program

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Quick Scheduling with a Pediatric Hematologist

Enjoy comprehensive service and award-winning healthcare. Submit an appointment request today, and we will follow up with you to confirm a time that works for you and your family.

Letting Kids Be Kids

Kids just want to have fun. But when your child has hemophilia, it’s hard to let them go out on their own and thrive. Any cut or bruise can be terrifying and a cause for a trip to the emergency room. As your child grows, both of you need to become experts on managing and treating the condition. The Pediatric Hemophilia Program is here to help and educate you and your child every step of the way.

Understanding Hemophilia

Hemophilia is a rare genetic disorder in which one’s blood does not clot properly.  People with hemophilia generally bleed for a longer time after a cut or bruise than someone without the condition. While small cuts are managed easily, it’s important to keep up with hemophilia to prevent bigger problems. A major problem for people with hemophilia is bleeding in the joints, especially in the knees, ankles and elbows. Internal bleeding can cause damage to organs and tissues, and may become life-threatening.

Common symptoms of hemophilia include:

  • Blood in urine/stool
  • Easy bruising
  • Internal/external bleeding
  • Joint pain and swelling
  • Unexplained, excessive bleeding

If your family has a history of hemophilia or your child experiences these symptoms, make an appointment with our team to get tested.

Central Florida’s Only Nationally Designated Hemophilia Treatment Center

The Haley Center for Children’s Cancer and Blood Disorders is an official Hemophilia Treatment Center, recognized by the Centers for Disease Control. Hemophilia treatment centers provide comprehensive care that includes preventive medicine and collaboration with community groups providing families with education and support.

You and your child will benefit from a multidisciplinary team of healthcare professionals, including pediatric hematologists, orthopedic surgeons, physical therapists, nurse practitioners, social workers, nurses, Child Life specialists, pathologists and referrals to other specialists, such as dentists, nutritionists and genetic counselors.

Our hematology team will develop a treatment plan to allow for an active and productive lifestyle. Most treatment involves regular infusions of a clotting factor and physical therapy to ease joint pain and swelling. In some cases, surgeries called synovectomies may be required to remove the inflamed tissue in the joints.

As an official hemophilia treatment center, our program receives receive federal funding through programs at the Centers for Disease Control, National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Health Resources and Services Administration, Maternal and Child Health Bureau and National Hemophilia Program.